About Healing Eden
Healing Eden is a start up non-profit that was founded by the parents of one very exceptional little girl, Annaliese Eden. After her 21 day battle with a Congenital Heart Defect, Annaliese was taken from this place leaving behind obvious unanswered questions and very little understanding. Today, we would like to channel that pain into helping other families avoid this unfortunate path by providing up to date, pertinent information regarding Congenital Heart Defects. Our goal is to raise awareness while helping to fund research & treatment efforts through various donations, and to provide families with support & bright futures.
“Though she be but little, she is fierce!”
- William Shakespeare
- CHDs affect nearly 1% of―or about 40,000―births per year in the United States.
- The prevalence (the number of babies born with heart defect compared to the total number of births) of some CHDs, especially mild types, is increasing, while the prevalence of other types has remained stable. The most common type of heart defect is a ventricular septal defect (VSD).
- About 25% of babies with a CHD have a critical CHD. Infants with critical CHDs generally need surgery or other procedures in their first year of life.
- The prevalence of all types of CHDs, including critical CHDs, varies by state and by type of defect.
- Source CDC
Our Story | Annaliese Eden
On Thursday, April 23, 2015, we found out we were expecting a baby. We were over the moon. We had fun with the typical thought process of wondering if it was a boy or girl, whose name choices would prevail, what their features would be etc. We just knew we were embarking on the best journey ever. On August 14, 2015 we walked into the women’s center for our anatomy scan. A scan we had been waiting for since day one. Hoping the baby was in good positioning to reveal their gender, it was all we talked about the way there, and while waiting to be called in.
The anatomy scan had revealed that not only were we expecting a baby girl, but one who was diagnosed with a congenital heart defect. Her defect is known as Transposition of the Great Arteries (TGA) with a Ventricular Septal Defect (VSD). We were then sent to Cohen Children’s Medical Center, where we’d be greeted by the top team in their field.
Valentina Annabella | Tetralogy of Fallot
"Valentina has Tetralogy Of Fallot. she was born on July 26th 2015 she came out pink, screaming and perfect. the first day of her life was spend like many other healthy babies in the hospital next to mommies bed. On the second day, she was taken to the nursery where we found out she had a murmur. We were reassured it was nothing but protocol but she had to have an echo (echocardiogram) just incase. A few hours after her echo, visitors were asked to leave her room and a doctor and nurse walked in to explain to us that Valentina had Tetralogy Of Fallot. a congenital heart defect that was not compatible with life and that she would need surgery to repair her heart. She had that surgery at 11 weeks old. she amazed many with her recovery and got to come home just 4 days later. Since her repair she has had monthly routine appointments with her cardiologist and just got the OK to wait 3 months until her next visit!! We are all very proud of her and lucky to have the honor of watching her as she fights CHD with every beat of her heart."
- Alexis & Anthony [Valentina's parents]